This week's guest blog entry is the longest that has ever been posted here, but I urege that not to dissuade you because as you will see from reading the first few sentences, the author draws you right in. The author in this case is known on the medical blogosphere as "SeaSpray." She is a prolific blogger and you can visit her blog site
here.
SeaSpray worked in a local hospital for 20 years in Patient Access (primarily emergency registration) but also Out Patients and Admitting. In addition to working at the hospital, she also worked at the Hospital VNA as a Lifeline Rep in which the primary focus was working out in the field visiting clients for the purpose of installation, educating client and family about the program along with follow-up tech support with lots of TLC mixed in.With that beind said, here's SeaSpray...
Part I - Background for the latter part.
After working for 20 years in Emergency registration with the hospital staff & patients, I know exactly what happens on the crazy nights in the ED when the rigs roll in seemingly non stop, sometimes accompanied by the paramedics (which is never good), the patients lie in stretchers in the hall because there are no other beds left, and the walk ins keep coming in like the outdoor signage is advertising free samples. Most of these patients believe that their emergency is “the” emergency and they are rarely alone which adds to the ever crowding ED. The phones are ringing, the patients get impatient, and everyone on both sides wants everything done yesterday. Among the emergent patients are some truly critical patients who will have priority with the staff. In compliance with the universal law of the ED -things get backed up! And amidst all of that there will invariably be grumpy patients who aren’t emergent that want to know why they can’t get a bed and why can’t the doctor “just look” at them so they can go! They are oblivious to the fact and perhaps wouldn’t care that a patient just died in room 3 and that staff is valiantly performing CPR on a cardiac pt in room 4, nor do they seem concerned that they can hear a multi-trauma pt screaming in pain down the hall. I understand the frustration coupled with desperation of both the staff and family when things are going south. I have seen how in the midst of this chaos they still find the time to console a grieving spouse or encourage a young mother. And on these shifts they don’t have time to eat and can barely stop to use the restroom.
Whether at my desk, a patient’s bedside or somewhere in between, I was at a good vantage point to observe both staff and patients. I know the ED staff’s goal is to treat and move the patient out the doors or onto the floors ASAP. Yes, sometimes a patient does get lost in the mix and staff isn’t always perfect but most of the time they give 100% and then some. I know how the staff thinks…the conversations between doctors, nurses and any other hospital employee that joins in. I know.
I also know how the patients and families think and react. I tried to diffuse the potentially negative situations by explaining that the staff was concerned about them but that they were tied up with another emergency and would be with them as soon as they could. I have heard all the complaints and witnessed the tirades and walk outs. Sometimes they did have legitimate concerns and complaints but most of the time not at all. While never showing my true feelings to the patients, I often thought that I would NEVER act like “they” were acting. (Judgments come easily when you’re not walking in the same shoes.)
Part II – View From the Stretcher
Then I became a patient. I don’t mean the kind of patient getting routine tests and exams but the kind of patient who is dependent on the assistance and skills of the medical professionals because they are so ill or in so much pain and maybe even a little scared, whether it is for one night or a chronic illness requiring “frequent flier” visits.
It is a given that the patient’s perspective regarding treatment may differ from that of the staff. I have had ample opportunity over the last few years to look through a patient’s eyes…my eyes, but from the unique perspective that I had always been the one on the other side of the desk interacting with the patients. Now…I was the patient looking up from the stretcher. I suppose I could be labeled as the conflicted patient. Regardless of my reason for being in the ED or an inpatient, it was always difficult for me to be “just” the patient. I continually saw things from the “staff” perspective, even at my most dire moments. The only exceptions were being in need of intervention for the most excruciating physical moments and even then I felt guilty for “bothering” them. While writhing in pain with my first kidney stone and vomiting, I remember thanking the OR staff for helping me before they put me out because I know how hard they all work and I wanted to let them know I was grateful for their help. As a patient, I also try to give encouragement when something isn’t going right (like not getting the IV in) or whatever else might apply and they are always appreciative.
Aside from a few exceptions here and there, I have had mostly terrific experiences at the local hospital I have chosen for my health care. That being said, the last two visits were less than stellar. The first negative experience involved post-op nurses who did not listen to me when I knew I was right about needing a foley catheter. I politely asked twice but they told me to calm down, stating it was normal to feel that way. One nurse said to me. “You DON’T want a catheter!” This was my fifth ureteral stent placement and I could feel the difference from the previous times. AND I didn’t need too “calm down” as I was never agitated. But instead of being assertive, I suffered in quiet desperation with tears silently streaming down my face. Their view of me was obscured by the curtain but fortunately my doctor came back in, asked me what was going on and took care of me.
A more recent experience involved going to the ED this past August. I was feeling great after the urological procedure and my friend, her daughter and I were going out to a late lunch but about 10 minutes after leaving the urology office, I started feeling weird and I thought maybe my blood sugar was low because I hadn’t eaten since the night before and now it was going on 4 in the afternoon. Even after orange juice I was rapidly feeling worse, actually feeling like I might die (not exaggerating) but I didn’t tell them how bad, just that I needed to go to the ER. I was so weak that I had to have her daughter call the urology office from my cell and then I left a message telling them which hospital I was going to just in case it had something to do with the procedure. I got sick in their car just before getting there. Suffice it to know I was quite ill and needed assistance to get into the ED. I know how triage works and so very much understood the 2 hr wait in the waiting room. An ED nurse came out to apologize and I said, “Don’t worry…I’m o.k. and I know exactly what you are going through because I worked in ED registration for 20 years.” (Lie #1 but I could see how busy they were) Two hours later I was still too weak to walk and so a nurse pushed me in a wheel chair to my room.
They put me in one of the trauma rooms at the far end. It was cold with two air conditioning vents blowing directly down near me. There were 2 huge bright light panels shining down on me that never shut off and there was no call button and no pillow although there was a sheet. I wasn’t feeling pain at this point because of the Percocet I had taken earlier for the urology procedure. I did request a pillow. When the nurse returned she hooked me up to an IV pump but forgot the pillow. I could hear the rigs rolling in one after the other on the other side of the door that was in the room and so I didn’t want to bother her. I was also NPO (not allowed to eat food or drink by mouth). However because she hooked the pump into my right arm, I set the pump off every time I moved my arm. The pump alarm went off for long periods because obviously they were tied up in the ED. I was embarrassed that I did it AGAIN. (After a while I shut the alarm off my self anytime I activated it.) However, prior to that, when the nurse came to shut the alarm off I told her I needed to take my antibiotic because of the urology procedure and also medication for HTN but she said “No, your NPO.” My husband found someone and I eventually got a pillow. I had pain in my right upper quadrant and right flank…I would say a 5 out of 10. They never did bring the pain meds.
The ED doc came in to tell me I would be going for an ultra sound and then he apologized for my having to wait so long. I smiled and said, “That’s ok…your busy saving lives…I understand.” (Lie #2 but I didn’t want to bother him). To which he said “Thank you, but you are important too.” I thanked him. It was nice to hear him say that. It wasn’t ok and I was miserable. I also asked him for meds and he said he would have the nurse get them but then she never did. If it was a regular room it would’ve been o.k. but this was awful. After 6 hrs in that room with only a sheet I was freezing. I would have asked my husband but I didn’t want to wake him because he needed to go to work in the morning. By the time the ultra sound tech came to get me at approximately O1:00 she could see my teeth were chattering, she felt my arm and got me a warm blanket. BTW that warm gel never felt so good.
On the way back to my room there was a cheerful patient standing at her doorway that recognized me from when she first came in and said, “You’re STILL here?” I smiled and said “I’m still here.” *Mental note made, this pt who didn’t appear as sick as me who came in 2 hrs after I was waiting in the waiting room is in a good room, with low lights, a television (not that I would’ve watched-I needed to sleep if possible), a call bell and better controlled temperature. I hadn’t eaten since 10 pm
the night before and so now 27 ½ hours later I was feeling hungry, feeling pain and now feeling scared because I didn’t understand what was going on. And I was feeling forgotten and neglected by the ED staff and then feeling guilty for feeling that way because truthfully, the rigs were still coming in and I knew they must have been having a hellacious night. Still it was what it was and I felt what I felt.
The ED doc came in about 02:00 to tell me that I had pancreatitis that appeared to be caused from the gallbladder, maybe a little stone blocking. He recommended admission and stated that I would need a procedure and possibly surgery. My internal stressometer was off the scale but I didn’t let on to him. I was additionally stressed because I believed the serious urology concerns were behind me and now I was being told I would need another procedure and possibly surgery for something else. I told my husband to go home because he had to get up in a couple of hours. I couldn’t sleep because of the bright lights and I was feeling awful physically. I gave up and just sat up on the stretcher with legs dangling over the side because my back was beginning to bother me lying on the stretcher. But I had wrapped the blanket and sheet around me because I was getting cold all over again.
The nurse came in around 03:45 and this is when it happened. First though, remember my 20 years experience with understanding the dynamics of a busy ED? Remember my sensitivity to the plight of the busy ED staff trying to juggle everything and my reassuring the patients? Drum roll please……I crumbled like a little girl and with tears welling up in my eyes… I asked the nurse, “Why did you put me in THIS room? Why does the woman who came in after me and doesn’t seem as sick have a nice room? (There could have been 10 women like that) Did I do something wrong?” I can- not -believe that “I” uttered THOSE words to an ED nurse and was ashamed the second the words left my mouth. She said, “Oh n-o-o-o. We’re just busy.” She checked my BP which had now spiked up high (it wasn’t when I first came in) and had me lie back. She left but came back with the blood pressure medication I had requested earlier. She apologized for not bringing the pain meds but said I would get them when I got to my room. Without any mention from me, she apologized about the lights stating that they are unable to turn them off in that room and she apologized that it was a cold room. From that point on she was attentive toward me, being extra nice until I was transferred upstairs at 04:30.
BTW- it is a good thing they didn’t give me the pain medication because the floor nurse told me she was about to give me the Morphine. I stopped her from giving it to me because I get violently ill form that drug. She said it was in the admit orders and was hesitant to believe me. (sigh) This time I stood my ground. I explained that I told both the triage and ED nurses that they should never give me Morphine or Dilauded. She came back later, apologized and said I was right. At least I was assertive with this.
Part III – Final Thoughts
Please know that I am aware (and was at the time) that I was not having a life threatening emergency or even a 10 out of 10 pain experience and things could have been so much worse. I admit that I was also feeling angry. I was feeling banished and forgotten. Yet I knew that in the ED you get whatever bed is available although sometimes they will put certain patients in specific locations for a purpose. I also knew that as great as ED staff is…they do forget people. I have done that with patients on my end of things when it’s super busy…it happens. Did that happen to me? Maybe, but I also didn’t speak up for myself. I lied or omitted information almost every time I had an opportunity to be proactive about my care because I was trying to be supportive of them. Perhaps if I hadn’t done this, the doctor and nurses would have re-evaluated my location. And I would surely verbalize my concerns if an acute medical problem exacerbated because in the end there is no other choice. The shocker for me was that I became this whiney, self pitying patient –ugh!
Also please know that I am not writing this post to complain but rather to share my observations. I am perplexed with my inconsistency in being proactive with my health care when I am in a hospital setting, although I am totally open with my private physicians. One would think that because of my experience in the medical environment that I would naturally assert my concerns until I feel heard. Yes, I do ask for help, but there have been other times in the past where I have held back because I continually identify with the work environment and don’t want to bother anyone, hinder the process or make waves when I disagree. Regarding my crumbling like a little girl if I hadn’t been so worn down from hunger, exhaustion, pain and stress and I had stopped projecting myself on the other side of the stretcher, identifying with the staff -but instead was honest with “my” concerns; I don’t believe I ever would have said what I said. I had a weak moment and I just crumbled. I was in the ED for 11 hours. (I recently read on another ED blog where patients are in the ED for 24-48 hours!)
And if I, a person who has been in the business for 20 years could feel so distressed, how much more so would an individual who doesn’t have any understanding of what goes on in a hospital? Do other health professionals feel conflicted when they are patients? Do doctors and nurses feel compelled to tell the staff how to do their job? Or do they retreat as I sometimes do? I did read about a physician who as a patient in the hospital withheld his personal opinion because he didn’t want to be competing with his colleague who was treating him, but that somehow worked against him although I don’t recall why.
When is nice too nice? Who is it really serving? What is the gain? What is the loss? Honesty and open communication is key and is what best serves the common goal to facilitate healing. I have always thought of myself as being compassionate with patients, but my journey as a chronically ill patient these last couple of years has all the more enriched my perspectives regarding patient experiences and I know that when I return to work, I will have even more to give back…because I have really been in their shoes and I have walked the walk.